Another

Another delay, another frustration, another fight! I got a phone call on Tuesday afternoon that the top decision making agency thinks Bryson’s Diabetes equipment requires a 24/7 medical placement. I admit I said some choice words in the last few days. Wednesday I was a mess… yesterday I did retail and ice cream therapy for myself. Maybe not the best methods but for now I’m coping. I got great support from the agency I’m working with and they told me to write a letter, here is part of what I wrote

“Bryson’s Diabetes equipment has been a blessing and the technology keeps on improving to allow Bryson to live a more full and safe life even with his diagnosis.  This decision that has been made in regard to a medical group home is backwards from the advancement of technology.”

The top people are worried about liability; covering their own butts. Not taking into consideration the “real person” behind all of this. I’m tired, I emailed this letter on Wednesday morning, it is now Friday afternoon and I have heard nothing. The lady that told me the information is kind and caring. She doesn’t agree with the decision she is just the one to deliver the news. Brad and my brother Nate have just arrived for the weekend. I am grateful!

Please pray

1. My support coordinator delivers my letter to the appropriate people
2. DDD Network decision makers reverse their decision without me having to appeal
3. My mental health in this waiting time
4. Bryson’s mental health, he is bored and ready to move on to the next chapter and is tired of the wait and not understanding all the details.

I continue to trust God has it all under control, but I don’t understand why everything that involves the disabilities world has to be so hard. Thanks prayer warriors!

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